Dementia 2020 Citizen’s Engagement Panel

Opinion Research Services (ORS), has been commissioned by the Department of Health and Social Care to engage with people with a diagnosis of dementia and/or their carers. The intention is that this will build on wider engagement and enable first hand reports to Ministers and senior management to determine if actions under the 2020 Dementia Implementation Plan are making a difference to people’s lives. They want to hear from as many people as possible to ensure that they properly reflect the experiences of people with dementia and their families and carers.


There are four phases of the engagement and in each phase we will be asking people to complete a short questionnaire about their experiences which can be completed by the person with dementia or by somebody else on their behalf. They have already completed the first and second phase and some of the results are available on their hub

The third phase questionnaire is now available on their hub and asks them about the experiences of day-to-day living for the person with dementia, dementia-friendly communities and dementia research. People can complete the online survey by visiting

It is really important and as many people as possible take part in this engagement.  This is a great opportunity for people to become really involved in shaping government policy and practice and they and we at EveryDay welcome advice from you on how to engage with and involve people who are affected by dementia who are in contact with us as customers of ours in Newcastle and North Tyneside.

How You Can Get Involved

By doing the following:

  • Take information to groups or meetings
  • Forward this e-mail to colleagues or friends
  • Retweet their messages (@dementiapanel)
  • Create your own Tweets
  • Put information onto your Facebook group page / WhatsApp Group
  • Share information
  • Distribute paper questionnaires to potential participants and friends or family members

To get involved take the survey

or for more information call Harriet Hendra (01792) 535337 or




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